Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Sunday, January 6, 2013

Breathe in, breathe out.  sip some more iced coffee.  Yes I am doing okay.  Boy everyone on my FB is so worried.  I love you guys!  .    Yes I really am okay,.  Not in the best of shape and I was scared earlier.  I really do appreciate all of your concern and yes I am okay.  I now appreciate those with MS a bit more, I understand that lack of vision and I think that is the scariest part.  If my vision were better I wouldn't be so afraid to drive but with it as bad as it is I don't dare get behind the wheel of a car right now.especially with it getting dark.

I'm feeling kind of "asthmatic" right now.  glad I was able to find my in haler because I ran out of the nebulizer medication and can't get it until I get the blood work done, can't get my thyroid medication until the blood work comes back.  Again I'm not going all the way to Wilkes Barre for the Endo, there is one up here in Scranton that is taking new patients so I'm going to see if I can get in there.  But I was able to "fuel" up enough today to feel okay.  and yes mom if I felt worse I would have called the ambulance to take me to the ER but I started feeling better.  I'm drinking iced coffee right now so I should be okay for the most part.  To keep track I'm setting my clock for tow hour naps.

I also want to get some fresh veggies would be nice, cucumber and tuna fish sandwiches would be nice.  Some pasta with dressing and green veggies, yeah that sounds good.   Maybe later, I'm going to kick up my feet right now and doze a bit with my Sophie, She has a full tummy for sure, was very pleased with her dinner tonight with the "drizzle" of bacon juice over her food this evening.

All of that will come in time, after my thyroid gets back to normal.  or what my normal is.  for now, a snooze.  This pretty much says it all...Waning moon phase moon is getting smaller
. 

Tuesday, December 18, 2012

About To curl Up

With my faithful dog.  It has been a horribly long day.  It was a horribly long day yesterday.  I've been flaring worse than usual the past few days.  I slept most of yesterday, finally got up around three had a bagel and some chicken broth.  I sat up for a bit and played a few games but then went back and sat down with Roku and slept. I couldn't even crochet. 

Dummy me I forgot about cauliflower and broccoli not being all that good for Lupus sufferers and oh it was so good in my veggie tray.  I went back to sleep early and was asleep all night.  Woke up but didn't want to be awake, I wanted to sleep but had to get up, go to the bank and then to the store.  But I did manage to hit Starbucks and that Vent i gingerbread latte was sooooooooo good (yes I know a lot ooooooos there)I felt so bad coming out of the store I thought I was going to pass out so I sat down for a bit and watched people walking by.  I was so glad I had a very close parking spot, because it took a bit for me to get going in at the car. 

Once home I was so tired.  On the way home Shannon tried calling, I had to wait until I was home and had everything in the kitchen.  My body is so exhausted that after awhile I just couldn't get up from my desk char I played some games, searched for and finally found someone on face book I hope she remembers me and accepts the friend request I sent her.  I also called Shannon back.  Oh I can not wait to be there where there is warm right now...they have over 60 degrees and here it is cold and damp and I hurt everywhere. 

My sinuses are stuffy, I'm thirsty, my back hurts, my right arm...oh yeah the tank fell on it in the cars so it's bruised, my elbow hurts.  Okay, to the kitchen, for some water, then turn the lights down,m going to my chair, pulling my comforter around me and putting my feet up, turning down the volume on the television and who knows, maybe sleep until tomorrow.  I just want to be over this flare, I just want to be out of the damp and the cold...


Tuesday, December 11, 2012

Awake at 5:99pm

Yes it's true I slept until almost 5:00pm.   Such is a Lupus flare.  I woke up on and off to take Sophie out but couldn't get my body to do much more.   It all started Saturday morning when a phone call woke me and I had a headache all day after the sun hit my left eye when I opened up my eyes.  It wasn't all that bad but I was quite tired and everything was hurting.  I gathered up the strength and made it to the store only to have my shopping trip  cut short because my back was beginning to kill me.  Monday I  woke up and was a bit energized and went to the store to pick up the rest of my purchases and again my back felt like knives were stabbing my spine and I was wishing someone would smack me in the back with a 2x4 just to take away the pain of the knives.  But I finally got everything, got it all home and put away. 

Sunday, some time  after I got home from the store diarrhea set in, which happens sometimes during flares and that made my backache even worse.  I swear there was a span of a bout three hours where I was sitting on the toilet and it felt like anything I had had to eat over the course of a month landed in my toilet.  I ate lightly, chicken broth and dry toast.  To add to it all the weather has been crappy.  Foggy, drizzly and today it rained rained, rained and rained some more!  So yes, I slept today away.  getting up only to let Sophie outside.  It felt so nice under that comforter, with Sophie right there next to me. 

With all the doing nothing that I was doing I did finish the crochet project that I was working on, now I'm making some winter scarves with the left overs from my many projects.  There is enough for another afghan but I want to get rid of some of the "scrap" so that they are out of the way.  Besides I have to get the last two I've made washed.  Right now, my big dinner of chicken broth and a peanut butter bagel.  gourmet all the way huh...



Saturday, December 8, 2012

Iced Tea and Backaches

When I woke up this morning it was cold and I couldn't get warm all day.  To top it off I had to go to the grocery store.  At first I was only going to stop at the Convenient store down the road but decided to head to the local grocery and if I could find a decent parking spot I'd go ahead on in. 

Fist I had to get Sophie outside which I did, it was foggy and cold and I couldn't get my fingers and toes warm.  I got everything ready to leave.  On my way to the convenient was when I changed m mind to check the grocery store.  Found a great spot right up front so I grabbed the extra tank and plopped it into the backpack just in case and headed in. 

Got a good basket, tossed the backpack in and entered the produce department,  They had some great looking bananas so I grabbed a bunch and the cucumbers although having gone up in price, looked very nice so I got three.  Grabbed a veggie tray and some bagged salad before heading for the dressing. 

I wasn't planning on getting those things but once there everything looked so good.  Went on down and got some black olives and then around to the dog food, then to the eggs and back for bacon when my back just above my right hip began hurting.  It felt as if the bone spurs  were poking into the nerves back there and it was all I could do to get through the checkout line to where I could sit fora few before getting the groceries into the car and home. 

Got home, Sophie was very interested in the "bounty" I had returned with and she wanted to go out again.  She noted that it was still foggy out and shuddered did her business then came back in.  I grabbed the mail, nothing, just junk (I was hoping some rich relative died and left me everything ...LOL)

Groceries put away, Sophie fed, I grabbed a banana noting that my fingers and toes are still cold, they say that it comes with Lupus, I used to get gloves because of my fingers but even with gloves and socks they have always been cold.  I think that over the years I've just gotten used to it enough that I don't realize it.  I fixed a large glass of instant iced tea and grabbed another banana.  Sophie decided she wanted some, yes bananas are okay for dogs, A good sweet treat for the both of us.

I was so tired after shopping that I took a break in the chair watching some television and fell asleep for about an hour.  So, here it is cold, and foggy and I'm drinking iced tea...makes sense?  Actually the cold tea makes my body go up a bit causing me to warm up.  but, yeah my fingers and toes are still cold. 

Because of my back/hip I had to cut the shopping short, didn't get the margarine or the bread or bagels but those can wait.   I can run to the Convenient to grab those things tomorrow.  Then on Monday I'll have to rest because my back and legs will be "toast" .  I could also use a massage in my neck/right shoulder, my clavicle/collarbone is in constant pain and it got worse when I was doing Physical Therapy.  My shoulder and upper back got better buy my neck/collarbone and upper thorax kept getting worse and they did nothing to help.   They even cause me headaches.  , yeah a good massage. 

Sunday, November 25, 2012

I started this earlier today...


Drinking coffee, finishing my toast, I was awake all night. Oh yes, I was tired. So, I grabbed a clean blanket fresh from the dryer, set the Roku for Netflix and "Private Practice" while I drifted off to sleep.  My sleep shades were on, Sophie was next to me in the chair, I reclined, I closed my eyes, I started to drift and then WHAM!  I was wide awake, my brain was going a mile a minute.  I don't know about any of you but when my braid does that I start seeing "visions" of thoughts, ideas going through my head and I can't sleep until I do something with those thoughts.  So I posted on my blog about Moon phases and how they effect me

After posting I still wasn't tired so I played a couple of games and took a couple of Calms and in a little while I was feeling sleepy, so back to my chair, back to the program, back to my blanket.  Sophie sat with me again snuggled up under the blanket.  I put on my sleep shades again, reclined, again,  started to doze off and my legs started tingling and feeling "jumpy" then they were cramping so again the Hylands leg cramp pills and restless leg pills as well.  Then I had to go to the bathroom.

Back to the chair and by now it was after 4:00am and I just kept clicking my Roku for more Private Practice.  Finally at 7:30 I gave up and took Sophie outside.  Came back in and went from Netflix to Hulu until I realized that what I was watching on Hulu I had already seen twice and made a mental note to myself to delete it from y queue when I got online (I'm going to have to do that soon).  Next I fixed a pot off coffee, went back to Netflix for another Private Practice in the middle of PP I decided to use my nebulizer, got the shakes, went in poured a shaky cup of coffee, fixed some toast.  Took me a few times just to get the fake butter onto the toast my hands were so shaky .

So here it is now after 3:00 and yeah I'm still awake.  I thought I might be able to nap a bit this afternoon for that didn't happen.  I've had Pandora going on the television for awhile now, still nothing.   After I feed Sophie dinner and I have a nibble I'm going to take a very warm relaxing shower with my "sleep inducing" body wash, take my relaxation pills, Watch some ION television while I crochet and hopefully fall asleep.  I also have some sleep inducing room spray that I'll use on the blanket and the chair, and perhaps my crocheting as well.  And my sleep mask, I could spray them all before I take the shower.

I could also use some Vick's Vapocream that usually soothes my muscles as well.  And then I look and read further on the lunar page that the moon waxing is in Aries from the 23rd until tomorrow...Shannon's father is an Aries.  Come on all you Astrologers would the fact that the waxing moon is in Aries have something to do with my being "Up All Night?"  I think I'm going to have to start watching the moon more closely...





In The Wee Hours

I have come to see just how "attached" my life is to the moon.   When I was younger I just thought I was what they call a "Night Owl"  I could stay up and party all night long and sleep through sun rise.  Get up in the late morning/early afternoon and stay up and party all night long again.

But then there were times when I'd be so totally exhausted day in and day out that coffee in gallons wouldn't have kept me away.

I was once told by a self proclaimed astrologist/psychic/reader that I was a "Child of the Moon", she said my choice of animals proved a part of it.  I have always been drawn to wolves and can't imagine my life without a Canine companion.  But really is that proof?

Could it be that my staying up through the night is that my inner spirit is governed by the moon?  But what about my need for sunlight?  For bright vibrant colors?  Ahhh but I also like the darker deeper hues as well.

When it comes to colors I am all over that rainbow.  I love the soft pastels of spring, minty greens but then I also love the deep rain forest colors and the moss greets.  but then baby pink is comfy too.  When it comes to reds though I like the deep bluer ones, the pomegranates, the cranberries.  I'm not an orangey or yellow person, and eww pea green?

But then, look at the moon isn't it sort of a soft pale, pastel yellow?  Yes I can handle that tint of yellow, cream color..  And the stars, silvery like glitter, oh good lord next thing you know I'm going to e talking about Unicorns...

Then, I do have a "dark side"  I have always enjoyed Disney's villains more than I have the Princesses, even though the villains never win there is something about their dark nature that draws me to them.  Something about how they always seem to come out at night...

So, what got me to thinking all of this lunacy (another reference to the moon). Was a few months ago I started keeping sort of keeping track of my sleepless nights and the moons phases, and sure enough, it seems as if my sleepless nights fall during the waxing phase of a full moon.  Waning...is when I am more tired than usual.

And there you have it, why they call it Lupus...another reference to the moon...


Friday, November 9, 2012

Weather is getting colder, hands are hurting more often.  If I were strong enough I'd probably we missing my lower right arm because just below the elbow where it was broken is in constant pain and there is a nice "lump" just barely viable there.  My fingers get so cold.

Oh, I didn't tell you about my "Help I've fallen" moment the other morning.  After my expierence with the flea spray (Dummy me) I switched chairs and everything was fine for awhile.  I remembered that the other chair had a problem with the back and that if I moved in a certain way I could wind up with my feet in the air and my head on the ground and having to do a backward somersault to fix the problem.  So I was just waking up the other morning, stretched my body fhead to toes with my arms above my head and yeppers it happened...t

So I had to do the back somersault then ease myself up with the aid of the stairs/newel post.  I was dizzy at first but once my head cleared I got the chair back to "normal", I continued to use it for a couple more nights but decided to switch back to the other chair just because knowing me I'd be doing it again and I'm in enough pain as it is.  Yes the accident hurt, my neck has been paying the price and my lower back hasn't been happy either.

Election day has come and gone.  It's another four years of Obama, I'm not happy about it but at least I dont' have to worry about my Medicare for four years.  After finally getting health insurance that doesn't cost $500 a month it would really upset me to wind up losing it.  What is there for folks like me to do?  Because of pre existings regular insurance would be out of hand, even the state issued insurance is over $300 a month.  But I guess those of us in need are supposed to slide under a rock somewhere ad die.

So, what's up with this, lately I've been craving chicken broth/soup.  I even woke up at 3:00 this morning craving it in my dream!  I'm sitting her finishing off a mug at this moment in fact.  Well chicken and rice/stars is sort of a "comfort food" for me so I guess that has something to do with it.

I finished another afghan and after I get it washed up I'm going to take photos of all of them then put them on Celtic Wych's site for sale.  I figure a flat rate of $25 each would be good...even offer "specials" from time to time a reduced rate when two or more are purchased.  I have all of this yarn (and of course I'll be getting more LOL) and I love doing these things but what do I do with them after I complete a project?  I'm one person and I've given so many of them away over the years.  Time to make a little money on them.

I do not like the time change.  I don't like having to turn the lights on so early in the day.  It starts getting dusky around 4:00.  It is actually kind of depressing since it is already the gray time of year and with the gray of dusk...gotta have color.  Besides I start getting sleepy as it gets dark and gloomy.  I am already looking forward to Spring and we haven't even been hit with winter yet...


Saturday, October 27, 2012

What a crappy day!  I was so exhausted after dinner that about 8:00 I fell asleep until almost 11:00.  I'm still tired and after checking the message boards I'm going to settle in for the night with Sophie.

Started out with me trying to find my keys so I could go to the bank.  Took me an hour searching for those damn things.  Finally found them under something I was going to return to Wal Mart but never got around to doing...

Then I had to get the tanks ready to go.  Wasn't sure if I was going to stop of at the store real quick so I took one tall tank and two smaller ones just in case.  I also had promised to take Sophie along with me so I had to hitch her up and calm her down while I got my shoes on and made sure I had everything I needed.

Then it was to the gas station because I needed a little, so I got $10 worth.  Had to wait while pulling away from the gas station and Sophie wasn't happy about that.  She started whining, but quit once we headed down the road.

At the bank I couldn't find my wallet buried under the backpack, found it then couldn't find my ATM card inside...found it sighed a huge sigh of relief and proceeded with my transaction.  More Sophie whining trying to pull away from the bank and up to Wal Mart.

One check of the parking lot told me no way was I going in so we headed home.  Luckily the light was with us so there was no whining from Sophie.

Home so I decided that since it wasn't raining yet I'd take Sophie for a short walk before grabbing the large tank and go inside.  After the walk she  promptly went under the car and got tangled in the muffler and mudflap!  I had to get her untangled and once I did I went for the larger tank, she went to the front of the car...

And got herself tangled in the front bumper!  Oh I was ready to kill her!  Got her untangled for a 2nd time and inside before anything else went wrong.  Got settled back in and relaxed a few minutes before starting dinner.

Had bacon and eggs for dinner and things got a little "smoky" as I was getting Sophie's food ready I began having trouble breathing.  I had to come to the living room and sit down over and over, got my dinner cooked used my rescue inhaler ate dinner, Sophie enjoyed hers.  After dinner we sat in our chair, I needed to relax.  I fell asleep and slept for three hours.  Woke up to a COPD flare, had to use the nebulizer.

Now I have the shakes, used the corticoid steroid inhaler and am felling a little better but tired.  I'm going to get some more water, take a couple of pain pills and head to the chair.


Thursday, October 25, 2012

I do not like using my nebulizer.  I get the shakes and the medication burns my eyes.  However I will be facing a change starting November so I'm going to be using the nebulizer here at home from now on.

November 1 Medicare kicks in and the pharmacy plan I will be getting doesn't cover my rescue inhaler but it will only cost me $3.00 for a 90 box of nebulizer medication.  That is opposed to the $30.00 I pay for the inhaler and I would much rather have that $27.00 in my pocket.

The burning eyes only lasts for a couple of minutes so I can deal with it.  It is worth it since the Medicare plan I got is a "complete/Advantage" plan and I don't have any premiums to pay.  I get hospital and medical for $99 a month which comes out of my disability check.  I also get a prescription drug plan and vision and dental benefits as well as a plan for my DME.

There are also some freebies, colo-rectal screenings, mammograms, and paps.  They pay 80% of my medical needs and I can handle the 20%.  I also have the option of finding coverage for the 20% copay.  I will look into that later on, I want to compare prices and plans first.

So I'm starting on using my nebulizer here at home and saving my inhalers for away from home.  I'm also going to be changing pharmacies because the one at Wal Mart has just frustrated me for the last time.  I have had to change my address and phone number three times with them, both online and in the store.  For some reason it doesn't "stay" in the computer.  And when there is a problem with my prescriptions they call the old number and leave a message.

I don't know who is getting the messages but they're not calling  Wal Mart back LOL   There was a "glitch" this last time I placed my refill order online, it should have been ready by the next day but I didn't get there until three days later.  Plenty of time for them to notify me of a problem either by phone or via email.  I didn't find there was a problem until I got there.  So I gave them my phone number again and I gave them my email address again.

So here I am all nebulized and ready to roll...Time for lunch.




Monday, October 22, 2012

You know there are days when I feel so totally unmotivated.  Usually they are my "high pain" days when my back hurts from the neck down and I've got a headache  My shoulders and arms ache as well

I look around at the mess I'm making and want to cry  because I just don't have it in me to clean it up  and I wind up setting myself back a few days on my cleaning because of it

I feel bad for Sophie having to put up with it, because I can barely move without pain in my joints and pain medications help but they don't do the job completely.   Then of course there is the fact that I have to go through the hassle of getting an O2 tank ready  and the minute she sees what I'm doing she gets excited and impatient and difficult to deal with, practically pulling me through the screen door.

The weather is nice, I just have to slip into a sweatshirt and shoes to go outside to enjoy it  But even that takes a bit of work, take out my cannula, put one arm through, hold the cannula in that arm while I put the other arm through and then put the cannula back in until I get to the portable tank and get it turned on then switch the cannula's then turn off the machine, then put my shoes on, then put the back pack on then hitch Sophie up..."Dammit Sophie slow down!"

Okay enough "Poor, Pitiful Me" I am going to at least take Sophie for a walk.  Going to grab my camera as well because it is a good day to get some good shots of the fall colors before everything goes gray again.  Now those are really days I am unmotivated...not looking forward to them either.


Friday, September 21, 2012

Well Sophie has adjusted to being "Only dog" she will spend part of the night in her basket sleeping and then after I've done my late night bathroom break she will curl up with me..   I don't mind, it's nice to have her snuggle in with me.


She loves the walks we go on and we have gotten to the stop sign up on the corner and back when I crank the O2 saturation way up.  If we go out around 3:00pm she does all of her "business"  and gets a nice treat for it.

There are things I need to get done around here but am taking one more lazy weekend to recoup from the flare this time around.  It was a bit worse than usual because the weed pollen has been very high and that along with the humidity hasn't helped.

Because of the pain in my neck and upper back I've had to stop using the computer so much.  It's nice though because now Sophie sits with me and we watch television while I work on the afghan I'm crocheting.  It has gotten to where I have to switch out though, go from one to the other when I start hurting.  Pain management...

The weather is turning and soon I'm going to have to drag the AC out of the window again.  I dread having to turn the heat on.  That's one good thing about the O2 machine, it puts out enough heat that I don't need to use the head as much.  Bad thing is you don't want to see my electric bill!  I don't want to see my electric bill!

Shannon has been working on her driving which means we are on the road to getting me to Texas hopefully not to far away.  My lungs will thank me for getting them out of the humidity, my joints will thank me for getting them out of the dampness and my bones will thank me for getting them out of the icy winds.  I won't miss the warping floors, I'm not going to go through any real strict cleaning measure.  I know he is just waiting for me to leave so he can gut this place.  

He won't evict me or ask me to leave because he doesn't want to feel guilty so  I'm sure he will be relieved when I'm gone LOL.  He can get in here and  really fix this place up,  I've heard him talking to his cousin that he wants to put in a bathroom upstairs off the bedroom and that would be a good thing,   I also know he wants to change the heating system to electric, it's gas now.  I'm going to leave the Washer and dryer here, or give them to charity and let Shannon take them off her taxes.

Right now the pain is coming up in my neck/upper back/shoulder area so I'm going to run off and crochet for awhile.  I am so looking forward to being where it is dryer and warmer and I can spend more time walking Sophie even in the winter.

Sunday, September 9, 2012

Every stupid person in Scranton had to have been at Dickson City Wal Mart this afternoon.  Yes I got there a bit later than usual.  I'm flaring and earlier just wasn't up to hauling my O2 tank in and out of the car.  In fact I stayed curled up in my chair until after 12 noon and when I got up my back sp0oke to me.  Not very nice things either.

I got to the bathroom and while I was sitting there I did some stretches to try and get my back to stop cussing at me.  It was letting me know that there was no way it was going to let me walk the smaller supermarket close to home, that if it had to go it was going to where they have the scooters and my head said "affordable" so off to Wally world the three of us went.

Sophie had to stay home alone for the first time since I took Phoebe in.  She did very well on her own and for behaving while I was gone I rewarded her with a treat and a quick snuggle before I went to put the groceries away.

Got to Wal Mart, had a scooter brought hoisted the tank into the basket and headed out.  People were congregating just inside the door, with people they hadn't seen in a while as if at some reunion of sorts.  Finally someone woke up and got everyone to move after I had said EXCUSE ME several times until I yelled it.

I started doing my shopping and of course you have those who compare, they stand in the middle of the aisle shifting back and forth from one brand to another and possibly another they compare sizes, they compare prices , they even compare packaging, as well as ingredients and nutritional value.   In the meantime I'm trying not to run into them as I maneuver the scooter around their bobs and weaves.

Then there are the men who are oblivious to the world around them.  they stand looking at one item for eternity and thinking that it is safe to go around them I do and sure enough they back right into the pathway and almost get hit, it's not like he didn't just look at me two seconds ago and see me om this thing!

Then of course are the kids running wild all over the store.  I'm having to stop so quickly I swear I've given myself whiplash!  Then there are the barely more than toddlers who come running screaming that they want a ride so the parental unit puts them into their basket and the kid screams more because the kid wants in the basket of the scooter.  Sorry kid the basket is made for kids and I'm not your source of entertainment for the day, now get the hell away from the scooter so I can get the hell out of this store!

While doing the last of my shopping the damn scooter runs out of "juice"  I get it close enough to the carts so I can quick grab a pushcart stuff everything into it and leave.  I scanned my list quickly and what was left were things that could wait so I went to the express check out because I had fewer than the amount of items, ran my card through for payment and headed to the car, which by the way was parked very close to the door today.

On my way out the door I noticed it had started to rain a bit and there were kids shoving their cans in my face to give, to whatever sports affiliation...Sorry kids I don't carry cash and kept walking, One of the adults made some nasty remark.   I pretended not to hear it opened my drunk got the purchases in, turned around saw him looking at me and I gave him the one fingered salute and got my tank and self into the car and pulled away,

Now I'm home, groceries are put away, my back is killing me, a massage would be heaven right about now.    I'm done for the day, Sophie and I are just going to "veg out" , her in her basket covered by her blanket, me in my chair, with the heating pad on...perhaps dosing a bit.  Just gotta be sure to feed Sophie in awhile, I don't want to wake up to her nibbling on my toes LOL

                     

Friday, September 7, 2012

Well it turned out to be quite a day for Sophie and myself.  
I did a little "puttering" around here after waking up late.  I got tired and so I sat and crochet a little while watching television.

Since Domino's was having a special , on their large two topping pizzas, carry out.  So I got everything ready, the tanks to get me there and back, I ordered online and decided to let Sophie ride along.  She got so excited that even before I was ready to go she was at the door.

I grabbed my keys and made it to the door with Sophie  trying to drag me out.  Locked the door behind me, got to the car, Sophie in, back pack with tanks in and off we went. to pick up dinner.

It was quite humid so I kept the air conditioner on in the car, not hot but that humidity is horrid.  Found a good parking spot, grabbed the back pack with tanks while Sophie tired to get out, I cracked the window and went in.  Got the pizza, it was ready when I walked in and the guy recognized me and brought it over, I signed the
CC slip and back to the car. , less than 5 minutes.    

Put the pizza in the back to keep Sophie's nose out of them, slid the back pack in next to Sophie got in myself got started and as I was pulling out I reached up to adjust my glasses but they weren't there!

I almost went into panic mode, but  I parked again and started searching the back seat where I figured they had fallen off... No luck .  I checked the back pack thinking they may have fallen in when I switched tanks, again no luck.  I got out and ran back inside to see if they may have fallen in  the store, nope they weren't there.   At this point a nice lady and gentleman looked under the cars but nothing.

Yes I was starting to panic.  I resigned myself to driving home without my glasses and would have to have an early eye exam and get another pair.  I sat with the AC on just breathing trying to calm down.  I felt something on the back of my leg, reached down to pull up whatever it was and TA DA, my glasses!  I yelled to the two who helped me out that I found them and I thanked them.  Rolled up my window, breathed a sigh of relief and told Sophie I wanted no more "adventures" for today.

Before I "dipped" into the pizza I jumped into the shower for a cool down.  Ugh, it was so humid that by the time we got inside poor Sophie's tongue was dragging and I would have been winner in the wet "kneecap warmer" contest for old ladies , (figure that one out LOL)

Pizza was very good, Sophie was a bit miffed that she didn't get any but she will just have to be miffed, she gets fed very well.  Now, I'm going back to my flare...at least I'll get to sleep tonight.

                         

Thursday, September 6, 2012

Flaring a little worse today because I haven't slept much.  Humidity was 91% last night so I didn't get to sleep until after the sun started coming up.  Finally got about four hours but that wasn't nearly enough but with the humidity I can't breathe as well and the air is just hanging there, no breeze, birds don't even sing/chirp on days like this.

So no undercutting for me today, I'll rest up today and get back to work tomorrow.  Sophie and I went to pick  up Phoebe's ashes yesterday.  They gave us a really nice box and a velveteen pouch with her ashes inside a plastic bag in it.   Yes I teared up and felt numb coming home.

Sophie behaved pretty well on the ride.  It took some forceful "Nos" to get her to understand that she couldn't sit in my lap while I was driving but she finally caught on and she was happy riding "shotgun" She enjoyed looking out the window , but got a bit "antsy " when we had to stop for a light.   We made it home in one piece, I fed Sophie and myself then I did some de-cluttering and finally called it a day.

I've started up a new crochet project, I belong to a group on Face book that has a "store" and after I get settled in Texas I'm going to start selling my afghans.  They will be reasonably priced nothing over $30 and just two basic patters.  I'm not out to make a million bucks, just to recoup some of the cost for yarn, because I enjoy crocheting, a moderately lucrative hobby.

I don't want to embark on any new ventures here because I'm going to need to be able to store not only the merchandise but shipping materials as well.  Who knows, maybe I'll even branch out and sell on EBay.  Maybe  Shannon can come on board with her jewelry making as well.  I do have a few  items that could be sold now that she has made...I'll have to run that by her.

For now, I'm going to nibble on home made chex mix and play a few games, take Sophie out and back in and just vegetate today, it' is a good day for vegetation LOL


Tuesday, September 4, 2012

Having a flare when you're by yourself can be difficult to say the least.  I woke up this morning in pain from my head to my toes.  I took Sophie out, got the tanks to the porch, had some breakfast and a half hour later I was sleeping again.

I woke up to the Batman Movie on ION, took Sophie outside, got the mail, junk of course.  Sat down to watch the rest of the movie, almost fell asleep when the O2 delivery came, I drag in the tanks and the fresh cannulas, signed the receipt then had to bring then all inside...

I had to turn on the AC because of the humidity.  I'm really feeling miserable.

I got up to get some iced tea and make myself a snack and it was all I could do to stand up.  I got dizzy walking into the kitchen even.   I get waves of total weakness and lethargy.  I hope this passes soon.

My snack is my own recipe for Chex Mix.  Rice and corn chex in a bowl with popcorn oil, any oil will do of course but I have the popcorn oil so figured I'd use it.  Some garlic powder and some cheddar cheese powder.  Mixed together then some buttery cooking spray, into the microwave for 29 seconds and viola...chex mix the way I like it.

My eyes don't want to stay open and I'm going to be asleep again soon.  Sophie keeps looking at me as if to ask if I'm feeling okay.  She came up into the chair a while ago to snuggle and cuddle.  The Vet clinic I took Phoebe to called to say her ashes were ready.  I'll go pick them up tomorrow.  I'll take Sophie with me, she can wait in the car while I go get Phoebe's cremains.

Right now, I'm going to finish my snack and my tea and sleep some more...


Saturday, September 1, 2012




Sophie and I are recovering from our loss.  I was awake earlier this morning and we went for a short walk.  The stress has gotten me into a mild flare which has manifested itself in a case of diarrhea, which of course makes my kidneys hurt and makes me tired and more stressed...

Anyway, after Sophie and I came back inside from our walk we had a bit of "snuggle time" while I watched a bit of television.  Well I didn't watch actually since there was really not much on.  I hit Style and Kimora Life in the Fab and wound up falling asleep after Sophie popped into her basket.

I'm going to take it easy today, do a bit of picking up, and keep the snuggles going with Sophie.

Sunday, August 26, 2012

Let's start with Friday night which was a long one.  I didn't get to sleep until "the wee hours".  Just couldn't get my body or what is left of my brain to just down and let me sleep .  Finally had to take some Melatonin and got to sleep around 3am.

Woke up Saturday morning  a little before noon, my back was hurting and I had diarrhea which made it difficult to do anything all day but I managed to get more done in the kitchen.  I really have to get going on getting things squared away because hopefully Shannon will be here late November or early December and I'll be heading to Texas!

The humidity kept climbing all day Saturday, making it more and more difficult to move as well.  I kept having to switch on the AC to cool things down despite the lower temperature, and I wasn't able to take the girls for a walk either...didn't want to risk a load in my "drawers" while out.

Saturday evening my stomach had settled down a bit, which I was thankful for.  I fed the dogs and then promptly fell asleep in the recliner while watching television.  Three hours later I woke up a bit hungry so fixed myself a salad along with some crackers and water and called it dinner.

That three hour nap however backfired because I couldn't get to sleep again last night and was up after 4am playing games and looking for something on television to lull me to sleep.  Another Melatonin and everything off and finally after about 45 minutes of my thoughts unwinding I managed to get to sleep.

Before I shut everything down for the night last night I did check the weather and we were up at 90$ humidity...no wonder I wasn't sleeping.  I am going to try my best to fight taking a nap today/this evening so I can get to sleep maybe before "the cock crows" and get up a bit early tomorrow morning so I can go do a short list of groceries.


Tuesday, August 21, 2012

With the lower temperatures sleeping has become more comfortable, I'm not waking up as much and I'm getting to sleep earlier.  Of course that means getting up a bit earlier which isn't a bad thing.  I was able to get to the store yesterday.  Got a decent parking spot got in and out didn't have crowds to contend with, no rude screaming kids. I even picked up a prescription all in less than an hour.

After getting groceries put away I took the dogs for a walk, and they were both so excited.  It was a nice afternoon and I'm glad we were able to get out.  It did rain later on and when we went outside the girls were none too happy.  Neither was I.

This morning I was up at a "decent" hour, did some "puttering" around here, I had laundry that needed folding.  I have some in the dryer that needs to be folded and put away as well...okay I would rather Hay put themselves away .

We also got in another walk, this one was longer than yesterday and yes it did feel good.  Had to call it short though because although it was great for my mood my hips were killing me and by the time we got to the porch my back was letting me know it had enough.  I had to sit down in the chair on the porch for a few minutes to ease the pain.

My back lower back and hips feel better but I have a cramp in my neck and every time I try to stretch it out I hear a "crackling.  my shoulder hurts too.  Oh I could use a good massage...I'm going to look up places to get a massage and see if I can get one for my birthday.  Or go to Steamtown mall and sit in one of their massage chairs for an hour...



Sunday, August 19, 2012

Strange morning this one was.  After getting to sleep before 2 am I slept until 9:30.  Opened my eyes to a headache and as I kept waking I was feeling all the pain.  I wasn't even sure I was going to be able to sit up but I pulled the lever on the recliner and yes I did sit up, although it hurt to get to that point.

So I got up and went to the bathroom, came back took my "morning pills" Then took the dogs out.  It was a nice morning and I really hated the thought of wasting it all inside, so when I got back in I started psyching myself up to taking the girls on a walk.  My upper legs and back were still hurting from the spill, my legs, just below the knees are sporting light bruises and yes painful to the touch.  Not enough to set me screaming but I will wince.

Well the girls were elated!  As soon as Sophie saw me grab the backpack with the tank in it she went nuts.  She was bouncing around, her tail was going she just couldn't wait,  Phoebe began to catch what Sophie had and was dancing around in front of the door yapping to hurry me along.  I got the back pack on, shoes on , hooked up their leashes and out we went.

I made it to the other side of the driveway next door before the pain made me turn around, to head back to the house.  We stopped once back on our driveway and I let the girls play in the grass a bit before It hit me that, this was where they picked up the fleas...so we finished the trek to the porch then back inside.  I gave them both a treat for the walk and switched from the tank back to the machine and sat back just to relax and I was asleep again.

I woke up again a little after 1:00 took the dogs out again, and realized the pain was harder to ignore so I took the APF Tylenol and went about my day as usual.  Got some of the kitchen squared away, goodness even did the dishes.  Had to sit down along the way but I managed to get some of it done.  There is still work to be done but it will get done.

For now, Sophie has let me know it's time to call it a night...she looks to be covered when she is sleepy so I covered her, Phoebe on the other hand doesn't like covers but she does enjoy her chair.  And me...well I have my chair as well...


Tuesday, August 14, 2012

What does a semi logically thinking person with common sense do when she wakes up in pain throughout her joints, can feel the heavy humidity making it difficult to breathe and upon going outside so the dogs can do their business early  she can feel the air "sweating" do?

Well considering that obviously the above wasn't me this morning, I got dressed in my jeans, grabbed a large tank of O2, put it into the car.  Got all three bags of garbage to the porch , got my keys, turned everything off except the small fan (yes even the O2 machine).  Picked up my wallet and my phone and out the door I went.

Got the bags of garbage into the trunk then out to the curb, Headed to the full service station where I had them put $10 into the gas tank.  Then off to the grocery store, where I was just going to pick up "a few things" .  I get the the cashier swipe my Food Stamp card, key in my pin and it's invalid WTHF?  I do it again, key in my pin and again invalid!  Since I didn't have enough in my regular account to cover it all I threw up my hands and said "forget this" and walked out.

While there is nothing I desperately need on my list I was hopping to get it today rather than have to run around tomorrow during a thunderstorm, but then I could wait until Thursday as well.  Anyway I tried to go to the EBT site and it's "currently unavailable" so I can't even change my pin number for food stamps and I'm going to have to call to see what the hell is going on.

By the time I got home though I was beat.  Got in, turned the O2 machine back on, closed the portable.  Sat for a couple of minutes then took the dogs out where by this time I was feeling miserable with the mugginess of the air, just not comfortable.  Once back inside I decided to take a shower break and washed and conditioned my hair while I was in there.  It felt good getting the "sweaty air" off of me

But I'm still in pain, I had to turn on the other fan because the humidity is still too high for me.  I checked the weather for where Shannon is...the weather is almost perfect.  A bit over 80 degrees, very low humidity and even the barometric pressure is at a good spot.  If I were there right now me and the girls would be on a walk...No I'm here with saturated air, muddy driveway and aching bones.  Happy, Happy, Joy, Joy.