Breathe in, breathe out.  sip some more iced coffee.  Yes I am doing okay.  Boy everyone on my FB is so worried.  I love you guys!  .    Yes I really am okay,.  Not in the best of shape and I was scared earlier.  I really do appreciate all of your concern and yes I am okay.  I now appreciate those with MS a bit more, I understand that lack of vision and I think that is the scariest part.  If my vision were better I wouldn't be so afraid to drive but with it as bad as it is I don't dare get behind the wheel of a car right now.especially with it getting dark.

I'm feeling kind of "asthmatic" right now.  glad I was able to find my in haler because I ran out of the nebulizer medication and can't get it until I get the blood work done, can't get my thyroid medication until the blood work comes back.  Again I'm not going all the way to Wilkes Barre for the Endo, there is one up here in Scranton that is taking new patients so I'm going to see if I can get in there.  But I was able to "fuel" up enough today to feel okay.  and yes mom if I felt worse I would have called the ambulance to take me to the ER but I started feeling better.  I'm drinking iced coffee right now so I should be okay for the most part.  To keep track I'm setting my clock for tow hour naps.

I also want to get some fresh veggies would be nice, cucumber and tuna fish sandwiches would be nice.  Some pasta with dressing and green veggies, yeah that sounds good.   Maybe later, I'm going to kick up my feet right now and doze a bit with my Sophie, She has a full tummy for sure, was very pleased with her dinner tonight with the "drizzle" of bacon juice over her food this evening.

All of that will come in time, after my thyroid gets back to normal.  or what my normal is.  for now, a snooze.  This pretty much says it all...Waning moon phase moon is getting smaller
. 

---Had a fairly decent nap.  Just woke up.  Needed that nap before I killed Sophie.  She's been getting her little self into a lot of trouble lately and getting on my last nerve.  She almost made it today with her little tricks;  I have been on and off flaring lately and my health hasn't been all that great because of it.  I am in need of blood wok on top o f it so I'm not in all that great of shape but I'm moving on as they say. 

Sophie has been a bit of a trouble maker getting into things and had gotten herself into minor scrapes like getting stuck outside under the car where I've had to go out and get her and it all culminated into me having to pull the dryer out fro the wall today so I could get her out from behind! 

Last week she got on my desk and knocked down the bowl of treats I have up here for when she does her business outside and comes in.  She enjoys them so they are "special" for when she does it all outside (Occasionally I will find poop on the bathroom floor, can't really say to much because it is the Bathroom floor only you know).  Not only did she knock this bowl down but she managed to get the lid off and eat all of the treats therefore emptying the dish before it's time and having to wait until I make another  dog food run next week. 

So she has been in search of anything that may have fallen on the floor while I have been fixing my meals and has chased some to under the stove fridge and of course washer and dryer.  Until today where she ran up and chased possibly a moue with a morsel behind the the dryer and got her little bootee stuck.  I was in there fixing myself a big "gulp" of water and heard her little whine had to go in and grab a tank pf O2 and boost it way up and set with it getting as much as I could so I could go in there and move the damn machine! 

And the doctor's office won't send someone out to help me with my car when I need to get bloodworm done.  Can you figure out why I would want to change primary providers?  Well I'm hungry right now, Sophie is too so I'm going to go get us some food and turn on some Judge Judy, want to join us?

Sophie Stay stay the hell out of trouble!!!

About To curl Up

With my faithful dog.  It has been a horribly long day.  It was a horribly long day yesterday.  I've been flaring worse than usual the past few days.  I slept most of yesterday, finally got up around three had a bagel and some chicken broth.  I sat up for a bit and played a few games but then went back and sat down with Roku and slept. I couldn't even crochet. 

Dummy me I forgot about cauliflower and broccoli not being all that good for Lupus sufferers and oh it was so good in my veggie tray.  I went back to sleep early and was asleep all night.  Woke up but didn't want to be awake, I wanted to sleep but had to get up, go to the bank and then to the store.  But I did manage to hit Starbucks and that Vent i gingerbread latte was sooooooooo good (yes I know a lot ooooooos there)I felt so bad coming out of the store I thought I was going to pass out so I sat down for a bit and watched people walking by.  I was so glad I had a very close parking spot, because it took a bit for me to get going in at the car. 

Once home I was so tired.  On the way home Shannon tried calling, I had to wait until I was home and had everything in the kitchen.  My body is so exhausted that after awhile I just couldn't get up from my desk char I played some games, searched for and finally found someone on face book I hope she remembers me and accepts the friend request I sent her.  I also called Shannon back.  Oh I can not wait to be there where there is warm right now...they have over 60 degrees and here it is cold and damp and I hurt everywhere. 

My sinuses are stuffy, I'm thirsty, my back hurts, my right arm...oh yeah the tank fell on it in the cars so it's bruised, my elbow hurts.  Okay, to the kitchen, for some water, then turn the lights down,m going to my chair, pulling my comforter around me and putting my feet up, turning down the volume on the television and who knows, maybe sleep until tomorrow.  I just want to be over this flare, I just want to be out of the damp and the cold...

You know there are days when I feel so totally unmotivated.  Usually they are my "high pain" days when my back hurts from the neck down and I've got a headache  My shoulders and arms ache as well

I look around at the mess I'm making and want to cry  because I just don't have it in me to clean it up  and I wind up setting myself back a few days on my cleaning because of it

I feel bad for Sophie having to put up with it, because I can barely move without pain in my joints and pain medications help but they don't do the job completely.   Then of course there is the fact that I have to go through the hassle of getting an O2 tank ready  and the minute she sees what I'm doing she gets excited and impatient and difficult to deal with, practically pulling me through the screen door.

The weather is nice, I just have to slip into a sweatshirt and shoes to go outside to enjoy it  But even that takes a bit of work, take out my cannula, put one arm through, hold the cannula in that arm while I put the other arm through and then put the cannula back in until I get to the portable tank and get it turned on then switch the cannula's then turn off the machine, then put my shoes on, then put the back pack on then hitch Sophie up..."Dammit Sophie slow down!"

Okay enough "Poor, Pitiful Me" I am going to at least take Sophie for a walk.  Going to grab my camera as well because it is a good day to get some good shots of the fall colors before everything goes gray again.  Now those are really days I am unmotivated...not looking forward to them either.

Strange morning this one was.  After getting to sleep before 2 am I slept until 9:30.  Opened my eyes to a headache and as I kept waking I was feeling all the pain.  I wasn't even sure I was going to be able to sit up but I pulled the lever on the recliner and yes I did sit up, although it hurt to get to that point.

So I got up and went to the bathroom, came back took my "morning pills" Then took the dogs out.  It was a nice morning and I really hated the thought of wasting it all inside, so when I got back in I started psyching myself up to taking the girls on a walk.  My upper legs and back were still hurting from the spill, my legs, just below the knees are sporting light bruises and yes painful to the touch.  Not enough to set me screaming but I will wince.

Well the girls were elated!  As soon as Sophie saw me grab the backpack with the tank in it she went nuts.  She was bouncing around, her tail was going she just couldn't wait,  Phoebe began to catch what Sophie had and was dancing around in front of the door yapping to hurry me along.  I got the back pack on, shoes on , hooked up their leashes and out we went.

I made it to the other side of the driveway next door before the pain made me turn around, to head back to the house.  We stopped once back on our driveway and I let the girls play in the grass a bit before It hit me that, this was where they picked up the fleas...so we finished the trek to the porch then back inside.  I gave them both a treat for the walk and switched from the tank back to the machine and sat back just to relax and I was asleep again.

I woke up again a little after 1:00 took the dogs out again, and realized the pain was harder to ignore so I took the APF Tylenol and went about my day as usual.  Got some of the kitchen squared away, goodness even did the dishes.  Had to sit down along the way but I managed to get some of it done.  There is still work to be done but it will get done.

For now, Sophie has let me know it's time to call it a night...she looks to be covered when she is sleepy so I covered her, Phoebe on the other hand doesn't like covers but she does enjoy her chair.  And me...well I have my chair as well...

What does a semi logically thinking person with common sense do when she wakes up in pain throughout her joints, can feel the heavy humidity making it difficult to breathe and upon going outside so the dogs can do their business early  she can feel the air "sweating" do?

Well considering that obviously the above wasn't me this morning, I got dressed in my jeans, grabbed a large tank of O2, put it into the car.  Got all three bags of garbage to the porch , got my keys, turned everything off except the small fan (yes even the O2 machine).  Picked up my wallet and my phone and out the door I went.

Got the bags of garbage into the trunk then out to the curb, Headed to the full service station where I had them put $10 into the gas tank.  Then off to the grocery store, where I was just going to pick up "a few things" .  I get the the cashier swipe my Food Stamp card, key in my pin and it's invalid WTHF?  I do it again, key in my pin and again invalid!  Since I didn't have enough in my regular account to cover it all I threw up my hands and said "forget this" and walked out.

While there is nothing I desperately need on my list I was hopping to get it today rather than have to run around tomorrow during a thunderstorm, but then I could wait until Thursday as well.  Anyway I tried to go to the EBT site and it's "currently unavailable" so I can't even change my pin number for food stamps and I'm going to have to call to see what the hell is going on.

By the time I got home though I was beat.  Got in, turned the O2 machine back on, closed the portable.  Sat for a couple of minutes then took the dogs out where by this time I was feeling miserable with the mugginess of the air, just not comfortable.  Once back inside I decided to take a shower break and washed and conditioned my hair while I was in there.  It felt good getting the "sweaty air" off of me

But I'm still in pain, I had to turn on the other fan because the humidity is still too high for me.  I checked the weather for where Shannon is...the weather is almost perfect.  A bit over 80 degrees, very low humidity and even the barometric pressure is at a good spot.  If I were there right now me and the girls would be on a walk...No I'm here with saturated air, muddy driveway and aching bones.  Happy, Happy, Joy, Joy.
                 
                             

I would like to be sleeping right now but for some reason I can't unwind.  It seems to be like this when I've had a good day.  My body won't wind down until the wee hours.

I'm going to try and get some sleep though because I would like to get to Wally World early to pick up a few things before those who plan on partying Wednesday get there to buy out everything I want to get.  Besides I have a prescription I need to pick up.

Looking at the backs of my hands as I type and I see this bruise on my left hand.  I wonder where I got it from?  I haven't hit my hand on anything, at least I don't remember doing so.  Most of the time my right hand/arm take a beating, I'm always hitting door jams with it, maybe that's why it is in the shape it is huh?

Anyway I am kind of curious to figure out how I got the bruise.  Right now both dogs are looking at me with that, "Hey we need to go outside" look...really, it's after midnight...sigh...

Well yours truly had a very productive morning.  Wit the weather so hot, and the stagnant air I was asleep by 10pm last night.  Yes I woke up a couple of times to go to the bathroom, however I went right back to sleep after making adjustments to the AC and the fans.

At 7am I was wide a wake so I decided to get the  monthly major shopping done while I had the morning cool to do so.  I readied my backpack, gathered my phone, my wallet, my keys.  I got dressed and by now the girls were curious, so I took them out and was hit with that wall of stagnant air already.

I turned the AC on low because I figured by the time I got home I'd be bitching myself out if I didn't.  The girls both got into the chair next to the AC and sprawled out because they too were hot just from doing their business.  I grabbed my backpack and my keys and out the door I went.  The girls didn't even bat an eye.

I found a "prime" parking spot right off the bat when I got there, got inside where there were lots of scooters to choose from.  Went about my shopping casually without having to dodge some one's brats or people standing in the aisles chatting blocking my way around them.

Got everything on my list within a short period of time, didn't even need to stop and change tanks...until I got to the check out.  That was easy as well because just as I pulled up the person ahead of me was done so I was able to get everything out of the basket on the scooter, pay for it and then get out of the way so I could change tanks.  Took the scooter back grabbed a push cart (Not allowed to take scooters outside the store any longer), Purchases inside the trunk, and off I went heading home all before 9am!

Made it home just after 9, took the dogs out no walk today, I was already feeling uncomfortable.  Got inside, girls got their treats and I set about getting things put away.  I repackaged my meats into single serving sizes, this way I'll have enough for an entire month and only have to go for things I run out of and fresh foods.  The girls were interested in what I was doing so I gave them their "brunch" but they only nibbled at it so I picked it up and covered it and put it into the fridge to keep fresh until dinner.

I grabbed myself a bite and some water, turned on the television and enjoyed the cool.  Kicked back in the recliner and fell asleep.  Woke up refreshed took the dogs out again, once inside I needed to turn the AC up to high, I just turned it back down again.

According to the weather reports we're supposed to have a thunderstorm between tonight and tomorrow night, the temperatures are supposed to be lower tomorrow and after the thunderstorm it's not supposed to be quite as humid...we can only hope...right now I've got to use my nebulizer...I hate that thing...

Okay so dummy me didn't eat all day, until now...That of course would account for the reason I got a bit shaky a while ago and got very dizzy.  I didn't realize how late it was until I did get dizzy.

I didn't wake up until afternoon today, yes lost most of the day but I was having leg cramps last night.  So while I'm out getting regular groceries this weekend I'll grab some leg cramp pills.

At any rate, I've just about my blog all done, I'm an driven as far as things that I want to do go LOL.   Now to channel that drive into things I have to do...

Well I think I have this pretty much figured out now.  I just need to decide how I want to decorate.  At any rate, welcome to the latest incarnation of CoeyG's ,   I did some wandering and looking around at other blogs and decided I wanted to give my space a complete overhaul.

In building/real estate terms I wanted to "flip" my site.  So I totally deconstructed it and began to reconstruct it from the ground up.  Still in the reconstruction phase but finally getting somewhere.

In the coming days I will be adding different backgrounds to different areas of my blog.  I've just about completed "My Journey With Lupus" page and have added a page showcasing what sometimes pops into my feeble mind as creative writing.

I'm also thinking of adding such things as a recipe corner and I'll be linking my Pintrest boards as well.

So bookmark me if you haven't already so you can find your way back if you wish to stop in again.  And please leave a comment, I like knowing who is stopping by and how they found my place...